Today, we sit down with Robin and Dave Dubin from the AliveAndKickn Foundation, who share their inspiring journey with Lynch Syndrome. Robin explains the genetic intricacies of this hereditary cancer predisposition, emphasizing the crucial role of genetic counseling and the proactive measures taken for their children as previvors.
Dave, a three-time cancer survivor, offers an account of his experiences, shedding light on the motivations behind the foundation's establishment and the significance of patient advocacy. Together, they reveal how personal battles can transform into movements that champion patient-centric approaches in the healthcare landscape.
Topics Discussed:
(00:00:00) Introduction
(00:01:10) Robin’s background
(00:05:07) Screening for Lynch syndrome
(00:07:08) The history of the foundation and what it does
(00:09:10) The biggest challenges in raising awareness for Lynch Syndrome
(00:11:12) What is most effective in educating patients’ families on Lynch Syndrome
(00:12:25) Interacting with larger biopharma and biotech companies pursuing research in this space
(00:15:43) The vaccine for Lynch Syndrome
(00:19:29) Increasing awareness for older patients
(00:22:24) How the foundation tries to educate the clinical community
(00:26:43) The countries the foundation focuses on
(00:28:49) Helping patients communicate with their families
(00:32:46) How people can get involved and support AliveAndKickn
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