Clarification: The median age of survival in Canadians born with cystic fibrosis is 60 years of age. The median age of death in Canadians with CF is 37 years of age.
When science fiction becomes a medical reality, the journey is anything but simple. Kelly Grover, CEO of Cystic Fibrosis Canada, dives into how Trikafta, the breakthrough CF drug, is revolutionizing treatment by targeting its root cause. While Trikafta brings significant physical health benefits, Kelly and Jeremie discuss the emotional and mental health challenges that arise as patients navigate new possibilities and uncertainties. The discussion highlights CF Canada's relentless efforts to support the CF community, advocating for research, improving access to treatments, and addressing the unique needs of those with rare mutations. Stick around for the end of the episode as Jeremie introduces the fellas to the work of the late/great Bob Flanagan - a performance artist who lived with CF and had a wild portfolio of art blending CF with BDSM.
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